I packed up my wig, wig supplies, shampoo and 22 headbands and scarves today. I won't toss them but hopefully won't be using them ever again. Well some of the headbands are nice and I will use - accessories only though :-)
Wednesday, June 25, 2014
So I finished chemo in May. I had an MRI in April that was picture perfect and more importantly I had my first post chemo MRI just last Wednesday that was also perfect. My doctor told me he wants to keep me on every 2 month MRI's for a few more years. Having them so frequently is good in that we will notice changes very quickly should they occur but it also means every two months going through the stress of sitting in the hospital all. day. long. just waiting to hear the results of the MRI. It's been eleven months since my second surgery, 7 months since I finished 33 rounds of radiation + 44 days of chemo and now 1 month since I finished 6 additional rounds of chemo. That's enough I think and here's to hoping for clear scans here on out.
Now to the fun stuff.
On May 4th, along with several coworkers and friends, I completed the first 5K I've run probably since graduating five years ago. Team Onward with Erin joined over 12,000 other people in the DC Race for Hope and our small team raised $630 for the National Brain Tumor Society. My only goal for the race was to finish it running and I did, we all did and with it being one of the biggest events NBTS puts on we had a lot of fun.
|CICU Representing with Dr. Bear at the Race for Hope|
|Team Onward with Erin pre-race (next year we plan on getting |
our act together sooner and getting cool shirts so get ready to join us!)
|Team Erin before the ride, I promise we only look professional, |
don't be intimidated by the cool clothes, we are always looking for new riders!
|Katie, Joyce and I before the ride|
|Team Erin with our supporters who came to cheer us on, we got awesome team shirts|
this year and will again next year so please come out!
|"In Celebration Of...My Last Day of Chemo!"|
So many thanks go out to everyone who donated to/participated in/came out to support the Race for Hope and Boston Brain Tumor Ride. I wish I could thank everyone personally but the list is so long. Just know that you are appreciated and every little bit counts and is going towards research for new and better treatment options. I am often reminded that there is still NO cure for brain tumors and only four FDA approved treatments for over 120 types of tumors (by the way, when I talked with my insurance company only two tumor types were approved for the type of chemo I received, there is no "approved" treatment for my type of tumor specifically). I was lucky that my tumor was in a place deemed "easily accessible", I am lucky that I work in a hospital and am therefore a "doctor snob" and chose (and knew how to choose) only to go to the top facilities for my care, I am lucky that I live in an area that has easy access to top of the line care and treatments, I am lucky that I work in healthcare and knew how to work the system when my insurance denied my medication. I have been lucky, most people are not that lucky.
I will leave you with links to two interviews I did to raise awareness of both the Race for Hope and the Boston Brain Tumor Ride. My next post may not be for a while but know that no news is good news in this case.
Arlington Connection - Race for Hope
Stoughton Journal - Boston Brain Tumor Ride
Till next time (but please don't hold your breath waiting!)